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Discover patient and professional communities as well as educational resources

Novo Nordisk is committed to supporting you and your patients with primary hyperoxaluria type 1 (PH1) throughout the treatment journey. Explore helpful organizations and communities below.

OHF: Oxalosis & Hyperoxaluria Foundation

Oxalosis & Hyperoxaluria Foundation logo

OHF brings people together to advocate and advance toward a cure for hyperoxaluria.

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NORD: National Organization for Rare Disorders

National Organization for Rare Disorders logo

NORD helps people battling rare disease feel seen, heard, supported, and connected. 

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AKF: American Kidney Fund

American Kidney Fund logo

AKF provides life-saving financial assistance and life-changing educational resources for people impacted by kidney disease.

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NKF: National Kidney Foundation

National Kidney Foundation logo

NKF provides education, resources, support, and advocacy for people living with kidney disease.

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GARD: Genetic and Rare Diseases Information Center

Genetic and Rare Diseases Information Center logo

GARD provides patients with reliable, easy-to-understand information about genetic and rare diseases.

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MedlinePlus

MedlinePlus logo

MedlinePlus is a patient resource that examines the causes and inheritance patterns of primary hyperoxaluria.

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RKSC: Rare Kidney Stone Consortium

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RKSC provides disease education materials for both patients and health care professionals.

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Additional professional resources

Mayo Clinic

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The Mayo Clinic provides hyperoxaluria and oxalosis disease education, including symptoms, causes, complications, diagnosis, treatment, and patient registry.

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R.O.C.K. Society

R.O.C.K. Society logo

R.O.C.K. Society is a special interest society that focuses on the basic mechanisms involved in human urinary stone formation. 

Visit website
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