Discover patient and professional communities as well as educational resources
Novo Nordisk is committed to supporting you and your patients with primary hyperoxaluria type 1 (PH1) throughout the treatment journey. Explore helpful organizations and communities below.
OHF: Oxalosis & Hyperoxaluria Foundation
OHF brings people together to advocate and advance toward a cure for hyperoxaluria.
NORD: National Organization for Rare Disorders
NORD helps people battling rare disease feel seen, heard, supported, and connected.
AKF: American Kidney Fund
AKF provides life-saving financial assistance and life-changing educational resources for people impacted by kidney disease.
NKF: National Kidney Foundation
NKF provides education, resources, support, and advocacy for people living with kidney disease.
GARD: Genetic and Rare Diseases Information Center
GARD provides patients with reliable, easy-to-understand information about genetic and rare diseases.
MedlinePlus
MedlinePlus is a patient resource that examines the causes and inheritance patterns of primary hyperoxaluria.
RKSC: Rare Kidney Stone Consortium
RKSC provides disease education materials for both patients and health care professionals.
Additional professional resources
Mayo Clinic
The Mayo Clinic provides hyperoxaluria and oxalosis disease education, including symptoms, causes, complications, diagnosis, treatment, and patient registry.
R.O.C.K. Society
R.O.C.K. Society is a special interest society that focuses on the basic mechanisms involved in human urinary stone formation.